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Research Ethics

The following are links to some websites that contain resources on ethical considerations in Aboriginal research. Please note that NAMHR is not responsible for content published on external sites.

National

Canadian Institutes of Health Research
Link: CIHR

On this page you will find CIHR Guidelines for Health Research Involving Aboriginal People (May 2007).

Lignes Directrices des IRSC pour la Recherche en Santé chez les Peuples Autochtones

Association of Canadian Universities for Northern Studies
Link: ACUNS

The Association of Canadian Universities for Northern Studies (ACUNS) represents Canada’s northern and polar researchers at its 39 member universities and colleges across Canada. It was founded at Churchill, Manitoba in 1977, and incorporated as a non-profit corporation in 1978.

Here you will find the document, Ethical Principles for the Conduct of Research in the North. You can find this document in French, English, Inuktitut and Russian.


National Aboriginal Health Organization
Link: NAHO

On this website you will find a page on Tool Kits concerning Ethics and Research for First Nations communities. You will also find a page outlining First Nations Principles of Ownership, Control, Access and Possession OCAP. You will also find the document First Nations Regional Longitudinal Health Survey (RHS) Code of Research Ethics.

Also located on the NAHO site is the The First Nations Centre, which houses a collection of readings on Aboriginal research ethics.



Online Course for Training in and Certification of TCPS2

http://www.pre.ethics.gc.ca

http://tcps2core.ca/


Royal Commission on Aboriginal Peoples
Link: RCAP

The Commission, established on 26 August 1991, was given a comprehensive mandate:

“The Commission of Inquiry should investigate the evolution of the relationship among aboriginal peoples (Indian, Inuit and Métis), the Canadian government, and Canadian society as a whole. It should propose specific solutions, rooted in domestic and international experience, to the problems which have plagued those relationships and which confront aboriginal peoples today. The Commission should examine all issues which it deems to be relevant to any or all of the aboriginal peoples of Canada…”

Here you will find the Royal Commission Report on Aboriginal Peoples. Within this report, Volume 5 - Renewal: A Twenty-Year Commitment includes information about research with Aboriginal peoples. You can find this information in Appendix E: Ethical Guidelines for Research.


The Interagency Advisory Panel on Research Ethics
Link: PRE

On this site you will find the Tri-Council Policy Statement on Ethical Conduct for Research Involving Humans.


Provincial

Alberta

The website of the Alberta ACADRE has publications on ethical considerations in research with Aboriginal Peoples. In addition, the journal Pimatisiwin which is published by the Alberta ACADRE, may contain articles on ethical considerations applicable to researchers and communities.


Manitoba

The website of the Centre for Aboriginal Health Research, at the University of Manitoba, holds a background paper on the Issues of Group, Community, or First Nation Consent in Health Research. This was commissioned by the Aboriginal Ethics Policy Development Project and the Canadian Institutes of Health Research.


Nova Scotia

The website Mi’kmaw Research Principles and Protocols lists the set of principles and protocols established by the Mi'kmaw Ethics committee to protect Mi'kmaq peoples and their knowledge.


Saskatchewan

The website Indigenous Peoples’ Health Research Centre holds a report entitled The Ethics of Research Involving Indigenous Peoples. This paper was a joint project between the First Nations University of Canada, University of Regina and University of Saskatchewan.


Quebec

Kahnawake Territory, Mohawk Nation

The website of the Kahanawake School Diabetes Prevention Program contains an example of the KSDPP Code of Research Ethics developed 10 years ago. An updated version is to be released in the near future. It also holds a document entitled Ethics in the Context of Research & Indigenous Peoples: A Bibliography


U.S.A.

The website of the Alaska Native Knowledge Network houses a page on behalf of the Alaska Federation of Natives entitled Guidelines for Research

The National Congress of American Indians Policy Research Center and Montana State University's Center for Native Health Partnerships are please to share a new resource. Walk Softly and Listen Carefully: Building Research Relationships with Tribal Communities was produced with insights from those involved with tribal research in Montana and elsewhere.

Increasingly, tribal leaders acknowledge that research is a key tool of tribal sovereignty in providing data and information to guide community planning, cross-community coordination, and program and policy development. Efforts to address longstanding issues, such as health disparities for American Indians and Alaska Natives (AI/AN), have increasingly used partnership research approaches. This document seeks to strengthen these partnerships by providing insight about how culture, sovereignty, and experience matter in research with Native communities.

You may download a copy of the report here: http://cnhp.montana.edu/WalkSoftly.htm 


If you have suggestions for additional resources on research ethics please contact us at 514-340-8222 x2192 or 5246.


CIHR